Director, Patient Advocacy - Rare Oncology Disease

Director, Patient Advocacy - Rare Oncology Disease

ICON plc is a world-leading healthcare intelligence and clinical research organization. We’re proud to foster an inclusive environment driving innovation and excellence, and we welcome you to join us on our mission to shape the future of clinical development.

We are looking for a Oncology-focused Patient Advocacy Lead to join our amazing Patient Advocacy Team!

What You Will Be Doing: 

You will be supporting ICON’s rare oncology focused biotech and pharmaceutical clients to develop and implement a strong patient advocacy strategy and to incorporate the patient voice into the clinical development lifecycle.  You will work closely with patient advocacy organizations, biotech and pharmaceutical industry clients, as well as internal ICON teams and stakeholders. You will interact with client’s teams and ICON internal teams to ensure the perspective, needs, and challenges faced by rare oncology diseases are considered and incorporated into protocol reviews and study conduct planning. 

Functioning as an extension of the client’s team you will identify key relevant patient advocacy organizations, develop an engagement strategy and implement through direct liaison.

• Support the Patient Advocacy team as a rare oncology disease patient advocacy strategy SME
• Working closely with client teams, developing and implementing patient advocacy strategies and engagement on behalf of ICON’s clinical stage, rare oncology disease focused clients aligned to client’s clinical development strategy
• Serve as a patient advocacy strategy SME in protocol reviews, study conduct planning meetings, proposal development and client meetings
• Develop patient-focused thought leadership content

What You Will Need: 

In addition to being passionate about oncological diseases, you must understand clinical trials and have prior experience working in the pharmaceutical/biotech industry and with patient advocacy organizations. RARE ONCOLOGY DISEASE EXPERIENCE IS AN ABSOLUTE MUST. 

• Undergraduate degree or international equivalent from an accredited institution is required
• Experience working within Pharma or Biotech is in either a patient advocacy, marketing, patient services or clinical development function is required
• Prior CRO experience is preferred
• Demonstrated ability to develop and implement a strong patient advocacy strategy in alignment with clinical development or brand/corporate strategy
• Strong understanding of the oncology disease patient advocacy landscape
• Strong understanding of the guidelines governing industry interactions with patient advocacy organizations
• Excellent presentation, communication and writing skills
• Demonstrated ability to lead cross-functional, multi-stakeholder projects
• Demonstrated ability to effectively navigate uncertainty and competing demands/priorities
• Self-motivated and proactive
• Working knowledge of all MS Office Suites (Word, Excel and PowerPoint) 
• 10-15 years of related experience preferred
• Additional experience working directly for patient organization(s) is highly preferred
• Occasional travel required
• To qualify, applicants must be legally authorized to work in the United States (or Europe), and should not require, now or in the future, sponsorship for employment visa status. 

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What ICON can offer you:
Our success depends on the quality of our people. That’s why we’ve made it a priority to build a diverse culture that rewards high performance and nurtures talent.

In addition to your competitive salary, ICON offers a range of additional benefits. Our benefits are designed to be competitive within each country and are focused on well-being and work life balance opportunities for you and your family.

Our benefits examples include:

• Various annual leave entitlements
• A range of health insurance offerings to suit you and your family’s needs.
• Competitive retirement planning offerings to maximize savings and plan with confidence for the years ahead.
• Global Employee Assistance Programme, LifeWorks, offering 24-hour access to a global network of over 80,000 independent specialized professionals who are there to support you and your family’s well-being.
• Life assurance
• Flexible country-specific optional benefits, including childcare vouchers, bike purchase schemes, discounted gym memberships, subsidized travel passes, health assessments, among others.

Visit our careers site to read more about the benefits ICON offers.

At ICON, inclusion & belonging are fundamental to our culture and values. We’re dedicated to providing an inclusive and accessible environment for all candidates. ICON is committed to providing a workplace free of discrimination and harassment. All qualified applicants will receive equal consideration for employment without regard to race, color, religion, sex, sexual orientation, gender identity, national origin, disability or protected veteran status.

If, because of a medical condition or disability, you need a reasonable accommodation for any part of the application process, or in order to perform the essential functions of a position, please let us know or submit a request here

Interested in the role, but unsure if you meet all of the requirements? We would encourage you to apply regardless – there’s every chance you’re exactly what we’re looking for here at ICON whether it is for this or other roles.

Are you a current ICON Employee? Please click here to apply